Our data comes from your experience

We use data to bring understanding to life-altering health conditions. We do this through clinically accurate medical summaries, and by asking questions that shed light on people’s shared experience.

This data blog captures your shared experiences through short, informal surveys – nothing here should be interpreted as a medical recommendation or suggestion for treatment.

Sign up for IBD surveys! (Other conditions coming soon.)

Brain beats health tracking apps for remembering stuff, according to IBD survey

145 people living with Crohn’s disease or ulcerative colitis took our Gut Check survey on remembering IBD stuff. Here’s what we learned:

Past and present symptoms, trigger foods and medication history are the hardest IBD things to remember (according to 81% of our survey-takers). Current treatments are pretty easy to keep track of – only 8% have trouble remembering these.

Do people do anything in particular to remember their IBD details? Some (30%) take notes, use smartphone apps or have copies of their records. But the majority of people (63%) remember stuff the old fashioned way – by using their brains.

And how well do our survey-takers remember what’s happened with their IBD? The collective memory’s slightly above average (3.6 out of 5).

We also got a ton of awesomely honest comments on this Gut Check. Check out the results, and see what everyone had to say!

Over 50% of people with Crohn's or ulcerative colitis use alternative medicine

53% of our survey-takers use alternative medicine (most in addition to prescription stuff).

For those who use alt meds, modifying diet – either with vitamins, supplements or specific foods – is the most popular approach.

Mental health-related options (like Reiki or talk therapy) are the least frequently used.

For 45% of survey-takers who don’t use alternative medicine, most just haven’t considered non-conventional options (but many wrote in noting their skepticism, due to a lack of “good data,” scientific evidence and “legitimate and consistent advice”).