We use data to bring understanding to life-altering health conditions. We do this through clinically accurate medical summaries, and by asking questions that shed light on people’s shared experience.
This data blog captures your shared experiences through short, informal surveys – nothing here should be interpreted as a medical recommendation or suggestion for treatment.
Sign up for IBD surveys! (Other conditions coming soon.)
Out of 127 people surveyed, 30% experience IBD-related pain a few times a week, and a whopping 42% deal with pain every day.
When the pain hits, painkillers, diet tweaks (like doing clear liquids or low residue) and taking it easy are how most people cope. Massage and acupuncture are the least-used ways of managing pain.
How effective are our survey-takers’ pain-coping strategies? 29% usually feel less crappy as a result, but 61% experience only minor relief (if any at all). We still have a long way to go in terms of addressing the pain problem, if the comments are any indication.
85 people participated in our latest Gut Check survey, and answered some tough questions: What do you lie to your doctor about, and why?
30% of our survey-takers don’t lie to their doctors at all. Some even seemed offended by the concept, responding with comments like “people need to grow up.” Mrrow!
For the 70% who do lie, most fibs are related to alcohol, drugs, junk food and/or not taking their meds as prescribed. The least commonly lied-about thing is alternative medicine (7%).
So what are the most common reasons for lying to doctors? 57% lie either because they’re afraid of being judged, or because they’re worried the truth will affect how they’re treated.
Maybe not everyone’s honest in the exam room, but the comments tell a different story. Check out the results, accompanied by some brave confessions!
145 people living with Crohn’s disease or ulcerative colitis took our Gut Check survey on remembering IBD stuff. Here’s what we learned:
Past and present symptoms, trigger foods and medication history are the hardest IBD things to remember (according to 81% of our survey-takers). Current treatments are pretty easy to keep track of – only 8% have trouble remembering these.
Do people do anything in particular to remember their IBD details? Some (30%) take notes, use smartphone apps or have copies of their records. But the majority of people (63%) remember stuff the old fashioned way – by using their brains.
And how well do our survey-takers remember what’s happened with their IBD? The collective memory’s slightly above average (3.6 out of 5).
We also got a ton of awesomely honest comments on this Gut Check. Check out the results, and see what everyone had to say!
53% of our survey-takers use alternative medicine (most in addition to prescription stuff).
For those who use alt meds, modifying diet – either with vitamins, supplements or specific foods – is the most popular approach.
Mental health-related options (like Reiki or talk therapy) are the least frequently used.
For 45% of survey-takers who don’t use alternative medicine, most just haven’t considered non-conventional options (but many wrote in noting their skepticism, due to a lack of “good data,” scientific evidence and “legitimate and consistent advice”).